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Driving Research, Delivering Education, Providing Support.

We provide education, support, and resources for the EDSEhlers-Danlos syndromesEhlers-Danlos syndromes are a group of inherited connective tissue disorders that can affect the skin, joints, blood vessels and other tissues.More info and HSDHypermobility Spectrum DisordersHypermobility Spectrum Disorders describe symptomatic joint hypermobility that does not meet the criteria for a specific type of EDS or another condition.More info community worldwide. 2026 RoadmapNew ClassificationThis is the new classificationMore info Available

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Our Strategic Focus

Driving measurable progress across diagnosis, care, and treatment

We focus on the key system drivers that shape the patient journey, improving diagnosis, strengthening care, and accelerating treatment development.

Faster, Earlier Diagnosis

Reducing diagnostic delays by improving clinical pathways and accelerating access to specialist assessment.

Better Access to Care

Improving access to coordinated, high-quality care by strengthening clinical capability and aligning care pathways.

Advancing Treatment & Research

Accelerating research and partnerships to enable effective treatments and improve long-term outcomes.

Who we are

Established in 2016, The Ehlers-Danlos Society is the leading global organization working towards change for those with the Ehlers-Danlos syndromesEhlers-Danlos syndromesEhlers-Danlos syndromes are a group of inherited connective tissue disorders that can affect the skin, joints, blood vessels and other tissues.More info (EDS) and hypermobility spectrum disordersHypermobility Spectrum DisordersHypermobility Spectrum Disorders describe symptomatic joint hypermobility that does not meet the criteria for a specific type of EDS or another condition.More info (HSD).

In 2026, we mark ten years of tireless advocacy, groundbreaking research, and a growing global community of people dedicated to changing the lives of people with EDS and HSD. What started as a dream of a more connected and empowered world for those living with these complex and often misunderstood conditions has become a global movement that is shaping the future of care.

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Ehlers-Danlos Syndrome

EDS Skin fragility was born from the need to connect the Beighton scoreBeighton scoreThe Beighton score is a screening tool used to assess generalized joint hypermobility using a set of physical movements and a points system.More info and creativity and consistency, empowering teams to design, build, and scale products under a single, unified vision.

  • Shared Foundations – EDS Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Cross-Team Efficiency – Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Scalable by Design – Whether it’s a website or an enterprise platform, EDS grows with your product.
Find Out More

Ehlers-Danlos Syndrome

EDS Skin fragility was born from the need to connect the Beighton score and creativity and consistency, empowering teams to design, build, and scale products under a single, unified vision.

  • Shared Foundations – EDS Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Cross-Team Efficiency – Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Scalable by Design – Whether it’s a website or an enterprise platform, EDS grows with your product.
Find Out More

Ehlers-Danlos Syndrome

EDS widespread painChronic painChronic pain is pain that continues over time. In EDS and HSD it may be linked to joint instability, muscle strain, nerve sensitivity or repeated injuries.More info was born from the need to connect the Beighton score and creativity and consistency, empowering teams to design, build, and scale products under a single, unified vision.

  • Shared Foundations – EDS Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Cross-Team Efficiency – Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Scalable by Design – Whether it’s a website or an enterprise platform, EDS grows with your product.
Find Out More

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Hypermobility Spectrum Disorder

EDS was born from the need to connect creativity and consistency—empowering teams to design, build, and scale products under a single, unified vision.

  • Shared Foundations – EDS Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Cross-Team Efficiency – Doctors, clinician, and Health care Provider collaborate seamlessly under one shared framework.
  • Scalable by Design – Whether it’s a website or an enterprise platform, EDS grows with your product.
Find Out More

Video

Real stories from our community, experiences that deserve to be heard

Got questions? We’ve got answers

Explore symptoms vEDSVascular EDSVascular EDS is a rare type of Ehlers-Danlos syndrome that can affect blood vessels and organs. It requires specialist medical care because of the risk of serious complications.More info

Explore vEDS symptoms by body system

Select a body system to view associated symptoms, signs, and related information.

Musculoskeletal illustration

Musculoskeletal

Explore symptoms linked to joints, muscles and connective tissueConnective tissueConnective tissue supports, binds and protects structures in the body. In EDS and HSD, connective tissue may be more fragile or stretchy than expected.More info.

Digestive illustration

Digestive

Explore symptoms linked to the digestive system.

Cardiovascular illustration

Cardiovascular

Explore symptoms linked to the heart, blood vessels and circulation.

Nervous

Nervous

Nerves and stuff like that

Limbic

Limbic

Not sure its even a thing

Legs illustration

Legs

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Musculoskeletal symptoms

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Digestive symptoms

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Cardiovascular symptoms

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Nervous symptoms

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Limbic symptoms

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Legs symptoms

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